Showing posts with label I need help. Show all posts
Showing posts with label I need help. Show all posts
Saturday, February 7, 2009
Paralyzed with Fear
I have a strange, unrelentless, incredibly strong fear of marriage.
I am 31 years old, I've never been married.
I have been proposed to by 4 people in my life.
I said no 3 times.
I am getting married in 3 months.
I woke up crying this morning about it.
I'm petrified.
Saturday, January 31, 2009
I need YOUR help!
OK guys, We need help!
There are two bills in Congress right now...
HR 653 - To amend title IV of the Public Health Service Act to create
a National Childhood Brain Tumor Prevention Network to provide grants
and coordinate research with respect to the causes of and risk factors
associated with childhood brain tumors, and for other purposes.
and
S 305 - A bill to amend title IV of the Public Health Service Act to
create a National Childhood Brain Tumor Prevention Network to provide
grants and coordinate research with respect to the causes of and risk
factors associated with childhood brain tumors, and for other
purposes.
Yes, you read that right, they are completely identical. The bills go hand in hand, but must be passed by the senate and house seperately before thay can be passed into law.
Lets get this done!
So what do you need to do?
#1. Contact your Congressional Representative and Senator in Washington D.C., representing your district, and ask them to support these bills and vote in favor of them.
You will need you full 9-digit zipcode, which can be found here
To find out who your Congressional House of Representatives Member and Senator are, visit this site.
#2. Contact your State Representative and State Senator (at your state Capitol) and ask them to file or support a joint resolution urging Congress to pass these bills. Remeber, you are asking for a "joint resolution".
OK, to find out who this is will be a little trickier. You will have to google "your state" general assembly. You may see a button that says "Who represents me?"
I have done the work for the top-five states that visit this blog. They are:
North Carolina
Vermont
Florida
New Jersey
Georgia
The best way to contact them is through e-mail. PLEASE, pretty please, and cherries on top, take a couple of minutes out of your day to do this.
Go ahead and take a look at the bills that we NEED to get passed:
House Bill 653
Senate Bill 305
#3. Ask your friends, family, helper network, medical professionals, church, community, school, teachers, and anyone else you can think of to do the same. You can copy and Paste this, and send it to everyone in your e-mail address books. The more noise, the better. In legislative affairs, it is very true that the squeaky wheel gets the grease, so to speak.
#4. If Congress passes these bills, and if your state passes a joint resolution, make sure to thank your Representatives and Senators.
To track it, you can go here
At the end of this post, I am going to include a couple of sample letters, the first is for your Congressional representatives in Washington, and the second is for your State representatives. They are just a little different. YOU DO NOT NEED TO USE THESE. But, you can if you want to, just make sure to add personal details.
Please customize your letter. Form letters that all say the same thing are extremely ineffective. But if you follow a general format, include personal testimony and clinical statistics, and “ask” for a specific action, your e-mail or faxed letter will be VERY, VERY impactful.
Hey YOU! Reading this right now, I am asking YOU to take action.
LETTER TO CONGRESSIONAL REPRESENTATIVE AND SENATOR
Your Name
Your Address
City, State, Zip
Today’s Date
Representative/Senator Jones
VIA E-MAIL/FAX (as applicable)
Dear Representative __________(last name) or
Dear Senator ________________(last name):
I am writing today to urge you to co-sign and pass companion bills HR 653 and S 305, which creates the “National Childhood Brain Tumor Prevention Network Act of 2009.” This vital legislation amends a portion of the Public Health Service Act and provides grants and coordinates research with respect to the causes and risk factors associated with childhood brain tumors.
As the proposed legislation cites, tumors kill more children than any other disease, and brain tumors are the second most common type of cancer in children. Childhood brain tumors are the leading cause of death from solid tumors in children. There are newly recognized types of brain tumors, as defined by the World Health Organization, and many of these newly recognized types occur in children. The causes of the overwhelming majority of childhood brain tumors are unknown. Brain tumors have substantial costs for affected children, the families of such children, and society. Childhood brain tumors cause significant morbidity and the loss of many years of potential life. The prognosis for most childhood brain tumors is dismal and survivors face lasting adverse health effects. Because of the relatively low overall incidence of childhood brain tumors, such tumors frequently do not receive sufficient attention and research funding.
No single institution has a sufficient number of patients to independently conduct research that will adequately address the causes of childhood brain tumors. There has been no comprehensive study analyzing all relevant clinical, biological, and epidemiological aspects of childhood brain tumors to identify potential risk factors and determine the cause of such tumors. Existing national cooperative clinical oncology groups primarily investigate treatment options and prognosis and do not typically examine the origins of childhood brain tumors or the risk factors associated with such tumors. A significant majority of children with brain tumors are first treated by neurosurgeons and not by oncologists typically involved in such groups.
[INSERT HERE, IN YOUR OWN WORDS, YOUR PERSONAL EXPERIENCE WITH A PEDIATRIC BRAIN TUMOR.]
Thank you for your leadership in the House (or Senate as applicable) and your consideration of this request. I would appreciate it if you would advise me of your actions on this extremely important and groundbreaking issue. My e-mail address is _________________. I look forward to hearing from you soon. (include your phone number if you wish.)
Sincerely,
your name
your address
LETTER TO STATE REPRESENTATIVE AND SENATOR
Your Name
Your Address
City, State, Zip
Today’s Date
Representative/Senator Jones
VIA E-MAIL/FAX (as applicable)
Dear Representative __________(last name) or
Dear Senator ________________(last name):
I am writing today to urge you to sponsor a joint resolution in the state assembly urging Congress to pass HR 653 and S 305, which creates the “National Childhood Brain Tumor Prevention Network Act of 2009.” This vital legislation amends a portion of the Public Health Service Act and provides grants and coordinates research with respect to the causes and risk factors associated with childhood brain tumors.
As the proposed legislation cites, tumors kill more children than any other disease, and brain tumors are the second most common type of cancer in children. Childhood brain tumors are the leading cause of death from solid tumors in children. There are newly recognized types of brain tumors, as defined by the World Health Organization, and many of these newly recognized types occur in children. The causes of the overwhelming majority of childhood brain tumors are unknown. Brain tumors have substantial costs for affected children, the families of such children, and society. Childhood brain tumors cause significant morbidity and the loss of many years of potential life. The prognosis for most childhood brain tumors is dismal and survivors face lasting adverse health effects. Because of the relatively low overall incidence of childhood brain tumors, such tumors frequently do not receive sufficient attention and research funding.
No single institution has a sufficient number of patients to independently conduct research that will adequately address the causes of childhood brain tumors. There has been no comprehensive study analyzing all relevant clinical, biological, and epidemiological aspects of childhood brain tumors to identify potential risk factors and determine the cause of such tumors. Existing national cooperative clinical oncology groups primarily investigate treatment options and prognosis and do not typically examine the origins of childhood brain tumors or the risk factors associated with such tumors. A significant majority of children with brain tumors are first treated by neurosurgeons and not by oncologists typically involved in such groups.
[INSERT HERE, IN YOUR OWN WORDS, YOUR PERSONAL EXPERIENCE WITH A PEDIATRIC BRAIN TUMOR.]
Thank you for your leadership in the House (or Senate as applicable) and your consideration of this request. I would appreciate it if you would advise me of your actions on this extremely important and groundbreaking issue. My e-mail address is _________________. I look forward to hearing from you soon. (Include your phone number if you wish.)
Sincerely,
your name
your address
There are two bills in Congress right now...
HR 653 - To amend title IV of the Public Health Service Act to create
a National Childhood Brain Tumor Prevention Network to provide grants
and coordinate research with respect to the causes of and risk factors
associated with childhood brain tumors, and for other purposes.
and
S 305 - A bill to amend title IV of the Public Health Service Act to
create a National Childhood Brain Tumor Prevention Network to provide
grants and coordinate research with respect to the causes of and risk
factors associated with childhood brain tumors, and for other
purposes.
Yes, you read that right, they are completely identical. The bills go hand in hand, but must be passed by the senate and house seperately before thay can be passed into law.
Lets get this done!
So what do you need to do?
#1. Contact your Congressional Representative and Senator in Washington D.C., representing your district, and ask them to support these bills and vote in favor of them.
You will need you full 9-digit zipcode, which can be found here
To find out who your Congressional House of Representatives Member and Senator are, visit this site.
#2. Contact your State Representative and State Senator (at your state Capitol) and ask them to file or support a joint resolution urging Congress to pass these bills. Remeber, you are asking for a "joint resolution".
OK, to find out who this is will be a little trickier. You will have to google "your state" general assembly. You may see a button that says "Who represents me?"
I have done the work for the top-five states that visit this blog. They are:
North Carolina
Vermont
Florida
New Jersey
Georgia
The best way to contact them is through e-mail. PLEASE, pretty please, and cherries on top, take a couple of minutes out of your day to do this.
Go ahead and take a look at the bills that we NEED to get passed:
House Bill 653
Senate Bill 305
#3. Ask your friends, family, helper network, medical professionals, church, community, school, teachers, and anyone else you can think of to do the same. You can copy and Paste this, and send it to everyone in your e-mail address books. The more noise, the better. In legislative affairs, it is very true that the squeaky wheel gets the grease, so to speak.
#4. If Congress passes these bills, and if your state passes a joint resolution, make sure to thank your Representatives and Senators.
To track it, you can go here
At the end of this post, I am going to include a couple of sample letters, the first is for your Congressional representatives in Washington, and the second is for your State representatives. They are just a little different. YOU DO NOT NEED TO USE THESE. But, you can if you want to, just make sure to add personal details.
Please customize your letter. Form letters that all say the same thing are extremely ineffective. But if you follow a general format, include personal testimony and clinical statistics, and “ask” for a specific action, your e-mail or faxed letter will be VERY, VERY impactful.
Hey YOU! Reading this right now, I am asking YOU to take action.
LETTER TO CONGRESSIONAL REPRESENTATIVE AND SENATOR
Your Name
Your Address
City, State, Zip
Today’s Date
Representative/Senator Jones
VIA E-MAIL/FAX (as applicable)
Dear Representative __________(last name) or
Dear Senator ________________(last name):
I am writing today to urge you to co-sign and pass companion bills HR 653 and S 305, which creates the “National Childhood Brain Tumor Prevention Network Act of 2009.” This vital legislation amends a portion of the Public Health Service Act and provides grants and coordinates research with respect to the causes and risk factors associated with childhood brain tumors.
As the proposed legislation cites, tumors kill more children than any other disease, and brain tumors are the second most common type of cancer in children. Childhood brain tumors are the leading cause of death from solid tumors in children. There are newly recognized types of brain tumors, as defined by the World Health Organization, and many of these newly recognized types occur in children. The causes of the overwhelming majority of childhood brain tumors are unknown. Brain tumors have substantial costs for affected children, the families of such children, and society. Childhood brain tumors cause significant morbidity and the loss of many years of potential life. The prognosis for most childhood brain tumors is dismal and survivors face lasting adverse health effects. Because of the relatively low overall incidence of childhood brain tumors, such tumors frequently do not receive sufficient attention and research funding.
No single institution has a sufficient number of patients to independently conduct research that will adequately address the causes of childhood brain tumors. There has been no comprehensive study analyzing all relevant clinical, biological, and epidemiological aspects of childhood brain tumors to identify potential risk factors and determine the cause of such tumors. Existing national cooperative clinical oncology groups primarily investigate treatment options and prognosis and do not typically examine the origins of childhood brain tumors or the risk factors associated with such tumors. A significant majority of children with brain tumors are first treated by neurosurgeons and not by oncologists typically involved in such groups.
[INSERT HERE, IN YOUR OWN WORDS, YOUR PERSONAL EXPERIENCE WITH A PEDIATRIC BRAIN TUMOR.]
Thank you for your leadership in the House (or Senate as applicable) and your consideration of this request. I would appreciate it if you would advise me of your actions on this extremely important and groundbreaking issue. My e-mail address is _________________. I look forward to hearing from you soon. (include your phone number if you wish.)
Sincerely,
your name
your address
LETTER TO STATE REPRESENTATIVE AND SENATOR
Your Name
Your Address
City, State, Zip
Today’s Date
Representative/Senator Jones
VIA E-MAIL/FAX (as applicable)
Dear Representative __________(last name) or
Dear Senator ________________(last name):
I am writing today to urge you to sponsor a joint resolution in the state assembly urging Congress to pass HR 653 and S 305, which creates the “National Childhood Brain Tumor Prevention Network Act of 2009.” This vital legislation amends a portion of the Public Health Service Act and provides grants and coordinates research with respect to the causes and risk factors associated with childhood brain tumors.
As the proposed legislation cites, tumors kill more children than any other disease, and brain tumors are the second most common type of cancer in children. Childhood brain tumors are the leading cause of death from solid tumors in children. There are newly recognized types of brain tumors, as defined by the World Health Organization, and many of these newly recognized types occur in children. The causes of the overwhelming majority of childhood brain tumors are unknown. Brain tumors have substantial costs for affected children, the families of such children, and society. Childhood brain tumors cause significant morbidity and the loss of many years of potential life. The prognosis for most childhood brain tumors is dismal and survivors face lasting adverse health effects. Because of the relatively low overall incidence of childhood brain tumors, such tumors frequently do not receive sufficient attention and research funding.
No single institution has a sufficient number of patients to independently conduct research that will adequately address the causes of childhood brain tumors. There has been no comprehensive study analyzing all relevant clinical, biological, and epidemiological aspects of childhood brain tumors to identify potential risk factors and determine the cause of such tumors. Existing national cooperative clinical oncology groups primarily investigate treatment options and prognosis and do not typically examine the origins of childhood brain tumors or the risk factors associated with such tumors. A significant majority of children with brain tumors are first treated by neurosurgeons and not by oncologists typically involved in such groups.
[INSERT HERE, IN YOUR OWN WORDS, YOUR PERSONAL EXPERIENCE WITH A PEDIATRIC BRAIN TUMOR.]
Thank you for your leadership in the House (or Senate as applicable) and your consideration of this request. I would appreciate it if you would advise me of your actions on this extremely important and groundbreaking issue. My e-mail address is _________________. I look forward to hearing from you soon. (Include your phone number if you wish.)
Sincerely,
your name
your address
Tuesday, December 16, 2008
The girl may be in rehab soon.
I don't seem to have enough time to update. B-Day posts soon. For now, I have a secret from the kids, and I want to tell them so bad, every day, and I just need to hold on.
Also, why does Walmart AND Books-a-Million AND Kmart have to be sold-out of the 3rd Vampire book? Poor Kyley, she read the 1st one in two days, and quickly had to get the 2nd, which she read in one day. Apparently they are really good. Also about 15000 pages long. Not really, but they are HUGE books. Now she is in withdrawal. I swear she is going through DT's and everything. I seriously have to find this 3rd book before she gets too sick. If you are in my area, and have the 3rd Twilight book, PLEASE HELP!!!
Also, why does Walmart AND Books-a-Million AND Kmart have to be sold-out of the 3rd Vampire book? Poor Kyley, she read the 1st one in two days, and quickly had to get the 2nd, which she read in one day. Apparently they are really good. Also about 15000 pages long. Not really, but they are HUGE books. Now she is in withdrawal. I swear she is going through DT's and everything. I seriously have to find this 3rd book before she gets too sick. If you are in my area, and have the 3rd Twilight book, PLEASE HELP!!!
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