EEEWWWWW!!!!!

Kyley has serious skin problems. She has been diagnosed with ecxema, and she gets a nasty rash on her legs every June that goes away in Dec. She has recently come down with another rash. Unfortunately, this one can't be covered up with pants. This is us at the Dr.'s office. They finally referred us to a dermatologist, and I will let you know what they say there. So now she has 2 different excema creams. One for her legs, and one for this.







POOR BABY.

I can understand him

update on Joshua's speech:

Josh is 5 yrs. and 11 mths. old.

After testing, they placed his vocabulary at 6 yrs. and 7 mths. They figured it by showing him pics, and he had to say the words. They totally missed the things he was good at though. Would they have been impressed if they had shown him every single football helmet in the NFL, and he had told him the name of the team? Or if they had shown him pics of music artists, and he had started singing their songs? Or even parts of the computer. He could have identified the monitor, mouse, keyboard, even a myspace page. Relevance people. Who cares if he doesn't know the word for thermometer. He said it tells you if it's cold or hot outside.

Ok, so his vocab. is 6 yrs., 7 mths, but his actual speech level is 4 yrs., 1 mnth.

Well, I understand him. Can't he just stay with me forever and I will translate for him? Sad to say, I guess that puts him almost exactly 2 yrs. behind his peers. And then he spent the rest of the time working on forming the letter "L" with his toungue, and he couldn't do it, and it was too cute to hear him try so hard.

Always Amazed

If you haven't been following my posts, I am so amazed at the care we receive at Duke Children's. I wanted to share with you an example of their commitment. Here is a copy of the e-mail I sent to his medical team at 9:39pm :


Dear Team,

I'm really not sure who I am supposed to e-mail about scheduling, Andrew McQueen, has an appointment with Dr. Grant on July 14th. We have noticed an increasing "attitude" for about a month, as well as lower energy for about that long. Now, he has complained of dizziness for 2 days. He also needed assistance walking once yesterday and once today. I was wondering if we should get an MRI scheduled sooner?


Thank-you,


Heidi Underhill
XXX-XXX-XXXX


Here is the reply we received at 9:43pm :


Hi there. We will try to move things up to see him sooner.
Latonya will give you a call.

Best regards,

Gerald Grant, M.D.
Assistant Professor, Pediatric Neurosurgery
Duke University Medical Center
Box 3272, Durham, NC 27710
Tel: (XXX) XXX-XXXX
Fax: (XXX) XXX-XXXX


And the reply we received at 9:46pm :

Yes, we can see him earlier as necessary. However, i would be at the ISPNO meeting from June 29th through the 3rd.

SG

**********************************************
Sri Gururangan, MRCP (UK)
Associate Professor of Pediatrics and Surgery
Director, Pediatric Clinical Services
The Preston Robert Tisch Brain Tumor Center
Duke University Medical Center
047 Baker House, Trent Drive
Durham, NC 27710

Tel: XXX.XXX.XXXX
Fax: XXX.XXX.XXXX


I am just amazed that within 7 minutes, we had received 2 replies. Did I mention that I love them? Also pray, or cross your fingers, or whatever you do. Keep Andrew in your thoughts.

Em Bare Assed

Conversation with the doctor today during Jake and Josh’s pre kindergarden check-up

Me: So you’re not going to report me to social services or anything?

Dr.: (laughing) nope.

Me: I just wasn’t home when they got up this morning.

Dr.: It’s typical boy behavior.

Me: The majority of the boys you see don’t like to wear underwear?




Conversation with the boys after the check-up

Me: Jake, you are SO tough! You only cried for about 5 seconds, and you got THREE shots!

Josh: Mommy, am I tough?

Me: Yeah, Josh! You are SO tough! You’re AWESOME!

Josh: Mommy, I wasn’t even cwyin.

Me: You weren’t?

Josh: No. I was pwetendin ta cwy.




Conversation with my mom and Rick after check-up

Mom: Well, that’s better than I thought you were going to say.

Me: Are you kidding? Most people put clean underwear on their kids before they take them to the doctor.

Rick: Well, better no underwear than dirty underwear.

Mom: Well, did that permanent marker ever come off where they drew circles around their nipples?